I reported to Xander's transplant coordinator(TC) that he has been rolling his eyes into the back of his head lately. This happened straight after transplant and I was told it was a reaction to him getting used to his meds. Whatever the reason, it did go away for a while. Well, it's slowly started happening again. Maybe a handful of times a day I'm guessing. I see it twice to maybe three times a day so it must be happening when I'm not looking. The TC guessed he might be having petit mal seizures. I hope not.
We'll find out soon enough though. On Friday, Xander will be having an EEG to see what's going on in his brain. Then we'll be seeing a neurologist to see what their thoughts are.
I'm praying, begging that this is nothing serious and hope for an easy fix. I don't want him to have one more thing to deal with.
3 comments:
Oh geez...lots of vibes that there is nothing serious going on. {{{{{{{{{{{Xander}}}}}}}}}
Oh my goodness, these babies go through way too much!!!! My prayers are with Xander and hoping that all goes well with his appointments and nothing serious is going on.
Jennifer & Brooke
Scary. I am praying he is all A OK
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