10.13.08

I was getting discouraged a little.  Wanting my son's life to be saved but not liking what had to happen in order for it to.  It's a strange thing to be happy and sorrowful at the same time.

October 13 - 8:25pm

~~yawn~~

It's been an uneventful day which I would normally say is good but now I say it's ok. I would like an eventful day that involes a new liver. It should happen soon. Xander is at the top of the list at Johns Hopkins so if one comes in that matches him, he gets it.

It's strange to pray for a liver knowing how it comes about. It's morbid really. I feel sort of guilty. Like I'm not praying just for a liver but for some one to pass on. It's not how I wanted it to happen. I was really hoping Ron would be the donor. I guess I have to have faith this is the way things are meant to be.

Hope everyone has a good night.
xxxooo

1:13pm

Not much to report. I dropped Ron off at the airport this morning. He made it safe and sound. The docs have been by to see Xander. Other than giving him an extra dose of lasix to help him get rid of the extra fluid he's retaining, they are satisfied with how he's holding. We've had a slew of other folks stop by to see Xander. It's so nice because they aren't obligated to. They do it because they care about him. That's Johns Hopkins for ya. I just love this place.